XLH Australia and Kyowa Kirin Australia collaborate in first-ever,
Australia-based patient impact survey.

New research revealing the extent of the physical, emotional, and social burden of X-linked hypophosphataemia (XLH) on Australian patients¹ has been released to mark Rare Disease Day (Monday, 28 February).

The first-ever, Australia-based research from XLH Australia Incorporated (in collaboration with Kyowa Kirin Australia) aims to increase understanding of what it is like to live with the rare genetic disease.¹

See the key findings in the infographic below.

Reference: Understanding the experiences of people with XLH. XLH Australia Survey 2022. Available at https://xlhaustralia.com/wp-content/uploads/2022/02/XLH-Survey-2022.pdf. Last accessed 22 Feb 2022